IPOPI held its 4th PID Forum on Cross-border Healthcare and PIDs on 29th of January in the European Parliament in Brussels, Belgium. This Forum looked into the potential benefits the… 4th PID Forum on Cross-border Healthcare and PIDs
Bettina Carty (42), from Malahide, has told of her struggle with a rare disease that has severely affected her family’s quality of life. She was diagnosed with Hereditary Angioedema (HAE)… Struggling with HAE
Hereditary Angioedema is a rare inherited genetic condition which causes huge swelling on any part of the body, but it is frequently misdiagnosed. by Gerry Fahey. Hereditary Angioedema (HAE) is… Hereditary Angioedema – the dramatic swelling disorder that can be fatal
The 4th edition of World Primary Immunodefiencies Week (WPIW) starts today with the theme “Test! Diagnose! Treat!”. From April 22nd to the 29th join us in a unique global momentum… World PI Week 2015
IPOPI will organise its XIIIth Biennial Meeting in collaboration with ESID and INGID later this year from the 28th of October to the 1st of November in the beautiful city… IPOPI Biennial Meeting 2014 in Prague
The 2013 IPOPI Review of Activities and Achievements is out and available online! In this report find out about IPOPI’s activities and achievements during the past year. 2013 was a historical… IPOPI Review of Activities and Achievements – 2013
IPOPI is pleased to announce the publication of its survey manuscript looking at Improving current immunoglobulin therapy for patients with primary immunodeficiency: quality of life and views on treatment. The… IPOPI Patient Needs and Outlooks Study Publication