YOUR STORY WILL CONTRIBUTE TO BRING HOPE AND INSPIRATION TO OTHER PI PATIENTS
IPIA will love to hear your story. If you are a patient with a Primary Immunodeficiency please send us your story. All stories will be posted in our web page.…
Patient Stories
“How I Got My Home Funding”
Orlagh Woods- CVID my story …. “How I Got My Home Funding” I’m now almost 22 and I’m still figuring things out as I go, especially when it comes to…
Oliver and Luke’s journey through their Bone Marrow Transplants at NewCastle-UK
Oliver and Luke’s journey through their Bone Marrow Transplants at NewCastle-UK Final Diagnose : Zinc Transporter Cell Defect My name is Colin and I’m here to share our family’s story…
Orlagh Woods- CVID my story
Orlagh Woods- CVID my story I wouldn’t say my diagnoses of CVIID was a ‘normal’ diagnoses. I wasn’t constantly sick when I was young, or on antibiotics every other week.…
Multiple Autoimmune Diseases – Ruben’s age 3 story
Ruben’s Story age 3 Autoimmune Diseases Thanks to Natalie, Ruben’s mother for sharing her little boy Ruben’s age 3 story. Ruben has multiple autoimmune diseases that affect…
YOUR STORY WILL CONTRIBUTE TO BRING HOPE AND INSPIRATION TO OTHER PI PATIENTS
IPIA will love to hear your story. If you are a patient with a Primary Immunodeficiency please send us your story. All stories will be posted in our web page.…
Wiskott-Aldrich Syndrome (WAS)
Wiskott-Aldrich Syndrome (WAS) The story of an Irish 5-year patient with WAS a rare genetic disease, a primary immune deficiency disease (PIDD). Keelan was 11 months old when he…
David Syndrome
This is the story of a teenager that lives in Ireland, that was born in a country without the possibility of a diagnose. He was then diagnose with CVID and…
