IPIA will love to hear your story. If you are a patient with a Primary Immunodeficiency please send us your story. All stories will be posted in our web page.… YOUR STORY WILL CONTRIBUTE TO BRING HOPE AND INSPIRATION TO OTHER PI PATIENTS
Orlagh Woods- CVID my story …. “How I Got My Home Funding” I’m now almost 22 and I’m still figuring things out as I go, especially when it comes to… “How I Got My Home Funding”
Oliver and Luke’s journey through their Bone Marrow Transplants at NewCastle-UK Final Diagnose : Zinc Transporter Cell Defect My name is Colin and I’m here to share our family’s story… Oliver and Luke’s journey through their Bone Marrow Transplants at NewCastle-UK
Orlagh Woods- CVID my story I wouldn’t say my diagnoses of CVIID was a ‘normal’ diagnoses. I wasn’t constantly sick when I was young, or on antibiotics every other week.… Orlagh Woods- CVID my story
Ruben’s Story age 3 Autoimmune Diseases Thanks to Natalie, Ruben’s mother for sharing her little boy Ruben’s age 3 story. Ruben has multiple autoimmune diseases that affect… Multiple Autoimmune Diseases – Ruben’s age 3 story
IPIA will love to hear your story. If you are a patient with a Primary Immunodeficiency please send us your story. All stories will be posted in our web page.… YOUR STORY WILL CONTRIBUTE TO BRING HOPE AND INSPIRATION TO OTHER PI PATIENTS
Wiskott-Aldrich Syndrome (WAS) The story of an Irish 5-year patient with WAS a rare genetic disease, a primary immune deficiency disease (PIDD). Keelan was 11 months old when he… Wiskott-Aldrich Syndrome (WAS)
This is the story of a teenager that lives in Ireland, that was born in a country without the possibility of a diagnose. He was then diagnose with CVID and… David Syndrome
