LATEST IPOPI PID INFORMATION LEAFLETS PUBLISHED
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Immune Deficiency Foundation – US
We are also happy to share a great initiative from the Immune Deficiency Foundation who recently launched a website to support parents of babies with severe combined immunodeficiency (SCID). The website www.scidcompass.org has been created to inform, support and empower parents and provides valuable information on diagnosis, thttp://www.scidcompass.org/reatment, and post-treatment.
A program of the Immune Deficiency Foundation, SCID Compass is funded through a federal grant from the Health Resources and Services Administration, an agency of the U.S. Department of Health and Human Services. SCID Compass is a program designed to guide parents of infants diagnosed with severe combined immunodeficiency (SCID), people living with SCID, and the medical community through the journey of learning about this rare life-threatening medical disorder and finding support to navigate the lifelong health challenges.
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