Statements sent to Irish Health Minister
2023: IPOPI Statements on PID Disability Recognition 2026: EU SoHO Implementation
News
YOUR STORY WILL CONTRIBUTE TO BRING HOPE AND INSPIRATION TO OTHER PI PATIENTS
IPIA will love to hear your story. If you are a patient with a Primary Immunodeficiency please send us your story. All stories will be posted in our web page.… YOUR STORY WILL CONTRIBUTE TO BRING HOPE AND INSPIRATION TO OTHER PI PATIENTS
Share Your Voice — Take Our Short Patient Survey
Dear IPIA Members, We warmly encourage all our members to take a few minutes to complete this important survey and make your voice heard. The European Reference Network RITA, which… Share Your Voice — Take Our Short Patient Survey
“IPIA’s New Year Vision: Gratitude, Growth, and Community Engagement”
Dear IPIA Members As we approach the festive season and the dawn of a new year, we at IPIA want to reach each of you with warmth and gratitude. This… “IPIA’s New Year Vision: Gratitude, Growth, and Community Engagement”
IPIA – World Primary Immunodeficiency Week 2023
IPIA, the Irish Primary Immunodeficiency Association, with the objective of raising awareness for those living with PI joined forces with various hospitals to celebrate World Primary Immunodeficiency Week 2023. With… IPIA – World Primary Immunodeficiency Week 2023
World PI Week 2023 Celebration
JOIN US IPIA aims to enhance the quality of life and increase awareness among people with primary immunodeficiency. To further this cause, IPIA is collaborating with St. James Hospital in… World PI Week 2023 Celebration
New statement: “Recognizing Primary Immunodeficiency Diseases (PIDs) as Disabilities: A Necessity for Those Experiencing a Heavy Burden of Disease”
Globally, there are significant disparities in the recognition and support given to patients with primary immunodeficiencies (PIDs). Even when these patients experience serious impairments (which may not always be visible),… New statement: “Recognizing Primary Immunodeficiency Diseases (PIDs) as Disabilities: A Necessity for Those Experiencing a Heavy Burden of Disease”
PRESS RELEASE – The Minister for Health Stephen Donnelly has approved a recommendation from the National Screening Advisory Committee (NSAC)
We here at the IPIA – Irish Primary Immunodeficiencies Association (IPIA) are thrilled to share the news that The Minister for Health in Ireland has approved the addition of a… PRESS RELEASE – The Minister for Health Stephen Donnelly has approved a recommendation from the National Screening Advisory Committee (NSAC)
Season’s Greetings 2022
IPIA wishes you a Happy Holiday Season & a Healthy New Year. Read our Newsletter by following the link
