IPIA will love to hear your story. If you are a patient with a Primary Immunodeficiency please send us your story. All stories will be posted in our web page.… YOUR STORY WILL CONTRIBUTE TO BRING HOPE AND INSPIRATION TO OTHER PI PATIENTS
Wiskott-Aldrich Syndrome (WAS) The story of an Irish 5-year patient with WAS a rare genetic disease, a primary immune deficiency disease (PIDD). Keelan was 11 months old when he… Wiskott-Aldrich Syndrome (WAS)
This is the story of a teenager that lives in Ireland, that was born in a country without the possibility of a diagnose. He was then diagnose with CVID and… David Syndrome
Primary Immunodeficiencies Congress – IPIC2017 – taking place in the vibrant city of Dubai on 8-10 November 2017. The 2017 meeting focuses on key clinical management developments in the field… Primary Immunodeficiencies Congress – IPIC2017
IPIA’s submission in December was successful and we were featured in IPOPI’s winter edition of e-news. The article can be found at IPOPI
In accordance with the theme of the 2017 WPIW campaign, we invite you to reflect on your experiences with primary immunodeficiency and access to Immunoglobulin replacement therapies. We will be adding… Share your story for World Primary Immunodeficiency Week
Primary immunodeficiencies (PID) are disorders in which part of the body’s immune system is missing or does not function normally. A forum entitled ‘Don’t Brexit on rare disease patients – the… Don’t BREXIT on Rare Disease Patients
After our last members’ meeting in the Red Cow, we learned that we need to get the charity status for the IPIA. We cannot expand the committee or get any… IPIA Goals for 2017 – Newsletter
The app is available for download in the App Store and Google Play. A newly developed mobile app called Primary Immunodeficiencies App was presented during the 1st Maghreb and 9th Moroccan PID… PID Classification: A mobile app to diagnose and classify PIDs
