In accordance with the theme of the 2017 WPIW campaign, we invite you to reflect on your experiences with primary immunodeficiency and access to Immunoglobulin replacement therapies.
We will be adding real life stories to our website and our YouTube Channel in April, to give our experiences a collective voice and reduce the feelings of isolation amongst our community, in particular amongst newly diagnosed patients.
How to get involved?
If you are interested in participating, please send your story to us as a text, graphic, drawing, voice recording or a video. You may also share them with us anonymously or in confidence, if you wish. Please use the following questions as a guide;
- What would you like other to know about living with Primary Immunodeficiency (PID)?,
- How has your life changed since you have received treatment?,
- What are the undesired side effects, if any, that you experience with immunoglobulin replacement?,
- Have you faced difficulties in obtaining insurance coverage for immunoglobulin replacement therapy?
Please send your stories to us by clicking contact us on our website or by emailing them to pidinfo.ipia@gmail.com or info@silver-pony-173711.hostingersite.com
For more information about World Primary Immunodeficiency Week 2017, please go to their official page
