IPIA News Letter October 2021
Living with a PID during these difficult times At the start of the pandemic, we experienced that all-encompassing feeling of fear. We essentially locked ourselves away and became real-life… IPIA News Letter October 2021
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World PI Week 10th Anniversary from 22nd – 29th April 2020 – Come and celebrate with IPIA
Follow the link to our Newsletter Checkout the 6-key-messages-on-immunoglobulin-therapies
Open Letter to Minister Simon Harris
Irish Primary Immunodeficiency Association Top Field Clonegath Fenagh Co Carlow. R21 X314 Mobile: Maria 0872369031 Email: pidinfo.ipia@gmail.com 6th June 2019 Minister Simon Harris, Department of Health, Office of the… Open Letter to Minister Simon Harris
IPIA was at the XV IPOPI Global PID Patients Meeting in Lisbon
The XV IPOPI Global PID Patients Meeting took place on 24-27 October 2018, in Lisbon, Portugal. IPIA as a National Member Organisation (NMO) had the opportunity to take… IPIA was at the XV IPOPI Global PID Patients Meeting in Lisbon
NEWBORN SCREENING
SCID Newborn Screening SCID Newborn Screening Severe Combined Immunodeficiency (SCID) is the most severe form of PID and a paediatric emergency. Patient organisations around the world and IPOPI strive to ensure that… NEWBORN SCREENING
IPIA Legal Status
IPIA Legal Status IPIA is now a registered company: “Irish Primary Immunodeficiency Association Company Limited By Guarantee” Directors: Martha Gouldsbury and Jim Colan Chairman: Rosa Aguiar Catraio Committee: Martha Gouldsbury,… IPIA Legal Status
Women’s Mini Marathon – 5th June, 2017
COME AND RUN WITH US GET SPONSORS OR SPONSOR OUR RUNNERS Register here Women’s Mini Marathon – 5th June, 2017 Please sponsor our runners All the money collected will be… Women’s Mini Marathon – 5th June, 2017
Wiskott-Aldrich Syndrome (WAS)
Wiskott-Aldrich Syndrome (WAS) The story of an Irish 5-year patient with WAS a rare genetic disease, a primary immune deficiency disease (PIDD). Keelan was 11 months old when he… Wiskott-Aldrich Syndrome (WAS)
