IPIA News Letter October 2021
Living with a PID during these difficult times At the start of the pandemic, we experienced that all-encompassing feeling of fear. We essentially locked ourselves away and became real-life… IPIA News Letter October 2021
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IPIA was at the XV IPOPI Global PID Patients Meeting in Lisbon
The XV IPOPI Global PID Patients Meeting took place on 24-27 October 2018, in Lisbon, Portugal. IPIA as a National Member Organisation (NMO) had the opportunity to take… IPIA was at the XV IPOPI Global PID Patients Meeting in Lisbon
NEWBORN SCREENING
SCID Newborn Screening SCID Newborn Screening Severe Combined Immunodeficiency (SCID) is the most severe form of PID and a paediatric emergency. Patient organisations around the world and IPOPI strive to ensure that… NEWBORN SCREENING
IPIA Legal Status
IPIA Legal Status IPIA is now a registered company: “Irish Primary Immunodeficiency Association Company Limited By Guarantee” Directors: Martha Gouldsbury and Jim Colan Chairman: Rosa Aguiar Catraio Committee: Martha Gouldsbury,… IPIA Legal Status
Orlagh Woods- CVID my story
Orlagh Woods- CVID my story I wouldn’t say my diagnoses of CVIID was a ‘normal’ diagnoses. I wasn’t constantly sick when I was young, or on antibiotics every other week.… Orlagh Woods- CVID my story
