Statements sent to Irish Health Minister
2023: IPOPI Statements on PID Disability Recognition 2026: EU SoHO Implementation
#PID #PrimaryImmunodeficiency
Share Your Voice — Take Our Short Patient Survey
Dear IPIA Members, We warmly encourage all our members to take a few minutes to complete this important survey and make your voice heard. The European Reference Network RITA, which… Share Your Voice — Take Our Short Patient Survey
New statement: “Recognizing Primary Immunodeficiency Diseases (PIDs) as Disabilities: A Necessity for Those Experiencing a Heavy Burden of Disease”
Globally, there are significant disparities in the recognition and support given to patients with primary immunodeficiencies (PIDs). Even when these patients experience serious impairments (which may not always be visible),… New statement: “Recognizing Primary Immunodeficiency Diseases (PIDs) as Disabilities: A Necessity for Those Experiencing a Heavy Burden of Disease”
Season’s Greetings 2022
IPIA wishes you a Happy Holiday Season & a Healthy New Year. Read our Newsletter by following the link
NEWBORN SCREENING
SCID Newborn Screening SCID Newborn Screening Severe Combined Immunodeficiency (SCID) is the most severe form of PID and a paediatric emergency. Patient organisations around the world and IPOPI strive to ensure that… NEWBORN SCREENING
Women’s Mini Marathon – 5th June, 2017
COME AND RUN WITH US GET SPONSORS OR SPONSOR OUR RUNNERS Register here Women’s Mini Marathon – 5th June, 2017 Please sponsor our runners All the money collected will be… Women’s Mini Marathon – 5th June, 2017
IPIA May Newsletter
IPIA, sends out to all our members and contacts the monthly Newsletter, its a way to be in touch with you all and updating everyone of our actions and… IPIA May Newsletter
PID Classification: A mobile app to diagnose and classify PIDs
The app is available for download in the App Store and Google Play. A newly developed mobile app called Primary Immunodeficiencies App was presented during the 1st Maghreb and 9th Moroccan PID… PID Classification: A mobile app to diagnose and classify PIDs
